Science That Changes Lives

MOVR 2.0

Help Shape the Future of Neuromuscular Research

Join the MOVR 2.0 Pilot Registry

The Muscular Dystrophy Association (MDA) is launching the next phase of its national patient registry — and you’re invited to be part of it.

What is MOVR 2.0?

MOVR 2.0 is a secure, research-driven registry designed to reflect what matters most to people living with neuromuscular disease. By sharing your medical history, you’ll help advance research, improve care, and accelerate the development of new treatments.

You’ll also gain access to tools that help you better understand your own health journey.

Why Join MOVR 2.0?

• Visualize Your Health
  Track trends and changes in your condition with easy-to-understand dashboards.
• Stay Informed
  Receive updates from MDA’s research team, including opportunities to participate in new studies or clinical trials.
• Drive Progress
  Your real-world experience helps researchers and clinicians better understand neuromuscular diseases and what’s needed next.
  This pilot was developed with input from individuals living with neuromuscular disease. Your voice makes it stronger, smarter, and more impactful.

Who Can Participate?

MOVR 2.0 is currently open to U.S. residents diagnosed with:

• ALS (Amyotrophic Lateral Sclerosis)
• BMD (Becker Muscular Dystrophy)
• DMD (Duchenne Muscular Dystrophy)
• FSHD (Facioscapulohumeral Muscular Dystrophy)
• LGMD (Limb-Girdle Muscular Dystrophy)
• Pompe Disease
• SMA (Spinal Muscular Atrophy)

No enrollment deadline at this time.