About Us

Welcome to the MDA Press Room

Raising awareness about how muscular dystrophy, ALS and related neuromuscular diseases impact the families we serve is critical for educating people about the urgent need for action and support.

For Media Inquires 

Mary E. Fiance
National Vice President, Strategic Communications
press@mdausa.org

Media Support

MDA is here to provide assistance with local or national stories about MDA, our lifesaving research and treatments, family stories/interviews, treatment protocols, expert perspectives on diseases in MDA's program, fundraising events, corporate partnerships and other issues related to muscular dystrophy, ALS and related neuromuscular diseases. Email press@mdausa.org for assistance.

Expert Spokespeople - Understanding Neuromuscular Diseases: What You Need To Know

MDA has incredibly knowledgeable experts and leaders on topics in clinical and scientific research, multi-disciplinary medical care, and advocacy for access for people living with disabilities. Learn more about interview subjects who are leading experts on muscular dystrophy, ALS and related neuromuscular diseases, and discussion on inclusion and access for people living with disabilities. Contact press@mdausa.org for interviews.

Guidelines for Reporting & Writing about People with Disabilities

• Syracuse University Disability Cultural Center
• National Center on Disability Journalism at Arizona State University Disability Language Style Guide