Innovations in Care
We provide access to support and programs that empower the lives of people living with neuromuscular diseases.
Print-Ready Educational Materials
MDA has prepared print-ready materials to help educate the neuromuscular disease community about the fundamentals of neuromuscular disease as well as topics related to daily living. New resources are always in development, so please check back periodically to access more information and materials.
Disease Fact Sheets
These fact sheets provide general information about each disease including signs and symptoms, diagnosis, prognosis and treatments.
To learn more about these and other neuromuscular diseases supported by MDA, visit our disease webpages.
Disease Specific Resources
Emergency Care Resources
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Emergency Preparedness for People with Disabilities
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Preparing for Emergencies: A Checklist for People with NMD
Exercise
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At-Home Physical Therapy Exercises for Pompe Disease
Gene Therapy
General Neuromuscular Disease Resources
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MDA Transition Guide: Pediatric to Adult Care
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Mental Health Considerations for Caregivers
Genetics and Genetic Testing
K-12 Education Resources
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MDA Transition Guide: Pediatric to Adult Care
Thank you to our supporter:
- MDA Care Centers
- MDA Engage Disease Symposia
- MDA Resource Center
- MDA Summer Camp
- Community Education
- Community Groups
- MDA Engage Archived Videos
- Young Adults
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