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Guidebooks and Pamphlets
A Teacher's Guide to Neuromuscular Disease
Designed for your child's teacher, this booklet provides information and support to teachers of students with neuromuscular disease and is intended to help teachers better understand the challenges faced by children and adolescents affected by neuromuscular conditions. It includes general strategies to enhance your student’s school experience both academically and socially, and it addresses school issues that may arise throughout K-12 education. Also included here are some additional planning tools.
- Download Booklet PDF
- MDA’s Educational Recommendations: Plan Ahead
- Recommendations for School Accommodations: Physical and Occupational Therapy
- Diagnosis: Charcot-Marie-Tooth disease (CMT)
- Diagnosis: Duchenne Muscular Dystrophy (DMD)
- Diagnosis: Limb-Girdle Muscular Dystrophy (LGMD)
- Diagnosis: Myotonic Dystrophy (DM)
- Diagnosis: Spinal Muscular Atrophy (SMA)
Everyday Life with ALS: A Practical Guide
In large type and with many illustrations, this manual contains extensive advice and support for those living with ALS and their caregivers. Step-by-step instructions, checklists and additional resources are included.
Road Map to Independence for Young Adults
This book assists teens, young adults and their families as they prepare for and transition into adulthood. It is designed to foster discussion within the MDA clinic setting and the parents/guardians and teen(s) with a neuromuscular disease.
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